- Physical Therapy and Exercise
Retrain Your Brain with Vestibular Therapy
Vestibular therapy exercises are designed to improve the vestibular system's function by challenging and retraining the brain to process information…
Read More » - Education
REM Sleep Behavior Disorder
What is RBD REM Sleep Behavior Disorder (RBD) is a severe secondary condition to neurological disorders in which the pontine…
Read More » - Advocacy
What a Year! 2022 Summary
Overview 2022 has been a busy year on the awareness raising front, which is a brilliant feat for such a…
Read More » - News
A Rare Reunion
From Tweetup to Meetup Rhys and Deb, 2019 It had been over three years since I’d first met my friend…
Read More » - Personal Stories
What the SSRA Means to Me
Nowhere to Go When I was first diagnosed with superficial siderosis (SS), there wasn’t much information around. It was a…
Read More » - Personal Stories
It’s OK not to be OK
It was RUOK day, but I was not OK. Yesterday was RUOK day, but I wasn’t. If I had been…
Read More » - Personal Stories
The Daily Frustrations of Superficial Siderosis
Making Plans Living with superficial siderosis is very frustrating, to say the least; it’s hard to plan anything due to…
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Running on Empty
Superficial siderosis can be excruciatingly draining on everyone it touches. Sometimes it feels like we’re running on empty. It’s been…
Read More » - Advocacy
U.K. Neurological Alliances Unite
‘Together for the 1 in 6’ Each of the four countries in the U.K. has its own Neurological Alliance, and…
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Community Forum Launches
Welcome to the Superficial Siderosis Discussion Boards While the popularity of social media has shown us a way to connect…
Read More » - Best Life
Wellbeing Therapy
Our readers living with Superficial siderosis should be aware that living your best life means you need to look beyond…
Read More » - Surgery
Is Digital Subtraction Myelography the Answer?
Finding Your Needle Leak in the Haystack While a traditional MRI may show the location of a pseudomeningocele, a Dynamic…
Read More » - Hearing
Cochlear Implant Assessment Day
The Cochlear Implant Question It’s back to London once again, this time for a full day of tests to see…
Read More » - Education
Preparing for a Medical Appointment
It’s always a good idea to prepare for your appointment, so you can get all the information you need out…
Read More » - Best Life
Reclaiming Your Independence, A Guide to Managing Hearing Loss
Living Your BEST LIFE with Superficial Siderosis Our readers living with Superficial siderosis should be aware that living your best…
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Improving Your Fitness
Specially written for LivingWithSS.comRollene Janelle, Guest Author Superficial siderosis (SS) is considered a rare neurodegenerative condition. The prevalence of superficial…
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