Nowhere to Go When I was first diagnosed with superficial siderosis (SS), there wasn’t much information around. It was a case of rummaging through Google to find things of relevance and chatting to other patients who had been diagnosed with… Read More... "What the SSRA Means to Me"
Category: Vision
Eye on Nystagmus
A 2021 Update Learning About Nystagmus It was late 2014. Gary and I were waiting for him to be seen by my ophthalmologist in her exam room when I wondered, why are so many superficial siderosis-related conditions seemingly impossible to… Read More... "Eye on Nystagmus"
Neurodegenerative Vision Problems
You move your eyes more often than your heart beats. Vision problems are one of the mysterious, unexplained symptoms people are plagued with long before their doctor knows what is wrong. While not as frequent as sensorineural hearing loss or… Read More... "Neurodegenerative Vision Problems"