- Advocacy
Getting Involved & Raising Awareness
Getting involved in events to raise awareness of superficial siderosis.
Read More » - Best Life
The Cochlear Implant Journey – A Year On
Background It would be an understatement to say it has been life changing for me to have a perception of…
Read More » - Advocacy
2023 In Summary
A Mixed Bag Like most years, 2023 has been full of up and downs. Awareness raising is going strong, and…
Read More » - Physical Therapy and Exercise
Morrello Para-Triathlon 2023
Putting the ‘TRY’ in Triathlon Back in 2020 when I first start having neuro-physiotherapy at the Morrello Clinic, Allison my…
Read More » - Advocacy
The Neurological Alliance Petition Hand-in
Department of Health and Social Care Members of The Neurological Alliance Co Production Group (a group of people from across…
Read More » - Hearing
The Cochlear Implant Journey
Prognosis Superficial siderosis can damage the cranial nerves which could prevent a cochlear implant from working. It wasn’t an easy…
Read More » - Advocacy
What a Year! 2022 Summary
Overview 2022 has been a busy year on the awareness raising front, which is a brilliant feat for such a…
Read More » - News
A Rare Reunion
From Tweetup to Meetup Rhys and Deb, 2019 It had been over three years since I’d first met my friend…
Read More » - Personal Stories
What the SSRA Means to Me
Nowhere to Go When I was first diagnosed with superficial siderosis (SS), there wasn’t much information around. It was a…
Read More » - Personal Stories
The Daily Frustrations of Superficial Siderosis
Making Plans Living with superficial siderosis is very frustrating, to say the least; it’s hard to plan anything due to…
Read More » - Advocacy
U.K. Neurological Alliances Unite
‘Together for the 1 in 6’ Each of the four countries in the U.K. has its own Neurological Alliance, and…
Read More » - Best Life
Wellbeing Therapy
Our readers living with Superficial siderosis should be aware that living your best life means you need to look beyond…
Read More » - Hearing
Cochlear Implant Assessment Day
The Cochlear Implant Question It’s back to London once again, this time for a full day of tests to see…
Read More » - Education
Preparing for a Medical Appointment
It’s always a good idea to prepare for your appointment, so you can get all the information you need out…
Read More » - Surgery
The Road To Neurosurgery
The Neurosurgery Repair Process In this piece, I’m going to share my personal experience of when I was admitted for…
Read More » - Best Life
Exercises for Balance and Mobility
Living Your BEST LIFE with Superficial Siderosis Our readers living with Superficial siderosis should be aware that living your best…
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