Ask the Experts: Superficial Siderosis Q&A Panel

A Rare Opportunity to Ask Questions About Superficial Siderosis in Real Time

If you’ve ever wanted to ask a leading neurologist or medical expert a question about superficial siderosis, this is your moment. On Thursday, June 12, during Patient Day at the Superficial Siderosis Research Alliance Symposium in Cambridge, Massachusetts, we’re hosting a live Q&A panel—and you’re invited to participate whether you’re attending in person or watching from home.

Led by SSRA President Kyle Dempsey, this moderated discussion will bring together some of the most respected names in Superficial Siderosis research and care. The panel is a rare opportunity to gain direct insight from clinicians who not only understand the complexities of this condition but are actively working toward better diagnosis, management, and treatment.

Panel Time: 1:15 PM – 2:50 PM Eastern (ET)

Meet the Expert Panel – Live and In Person

All of our speakers will be presenting earlier in the day on topics such as hearing loss, balance, medical care, CSF leak surgery, iron chelation, and navigating life with superficial siderosis. Then, they’ll gather together for the afternoon Ask the Experts Q&A panel, open to both onsite attendees and livestream viewers. You’ll get a chance to submit your medical questions and hear the answers straight from the specialists themselves.

How the Live Q&A Will Work

For our remote audience, a live chat submission box will be available on the streaming Teams platform. You’ll be able to type your question and send it directly to our team. We’ll be monitoring incoming submissions and passing your questions to the moderator in real time. You’ll hear your question read aloud and answered live during the session.

Don’t miss out—register now to receive your remote viewing link!
All registered remote viewers will receive an email with their link on June 6, 2025.

What You Can (and Can’t) Ask

This panel is designed for questions. We kindly ask all participants to focus their questions on topics such as symptom progression, treatment approaches, types of specialties, and clinical care. While we understand many of you face frustrating delays and challenges, this is not the right forum for complaints or personal care coordination.

Instead, think of this as your chance to tap into world-class expertise—an opportunity that doesn’t come around often in rare disease circles. Ask about diagnostic criteria. Are you wondering if a problem is related to SS, or is it something unrelated? Are you unclear about what each surgical option entails? Ask about treatment options. Ask your concerns. This is your moment.

Don’t Miss the Panel – Register Today

We’re incredibly excited to offer both onsite and remote attendees a front-row seat to this special Superficial Siderosis Q&A panel. Whether you’re living with SS, caring for someone who is, or just eager to learn from the best, this session promises to be engaging, educational, and deeply meaningful.

• Global Time Zone Reference for Panel (June 12)
  1:15 PM – 2:50 PM Eastern Time (ET)
  10:15 AM – 11:50 AM Pacific Time (PT)
  6:15 PM – 7:50 PM British Summer Time (BST)
  7:15 PM – 8:50 PM Central European Summer Time (CEST)
  17:15 – 18:50 UTC (Coordinated Universal Time)