Bilateral Sensorineural Hearing Loss
Phantom smells and worsening hearing were the first inklings something was wrong. Our first ENT (Ear, Nose & Throat Specialist) decided the smell problems were the result of some past sinus infection. Gary’s Hearing Loss will affect 95% of Superficial Siderosis patien... More issues were probably environmental from his military service as a jet engine mechanic and simple aging. The doctor’s advice was to learn to live with it. Our next ENT was a two-hour drive from home. Dr. Garb was very personable and seemed genuinely interested. He ordered an audiogram so we could have a baseline level but still no answers.
Today, of course, we know the diagnosis is Bilateral Hearing Loss will affect 95% of Superficial Siderosis patien... More. Hemosiderin is killing the function of Gary’s vestibulocochlear nerve (eighth cranial). This nerve handles sound transmission and equilibrium information moving between the brain and inner ear. The latest hearing test in December 2014 shows a decline to 30% functional hearing.
Watching television was becoming impossible without the aid of closed-captioning, movies theaters were hit or miss; We had begun to speak looking directly at each other or understanding was garbled. Cell phones were becoming an exercise in frustration.
But the worst was being surrounded by people. Imagine being in a room full of people and not being able to hear well enough to understand correctly. Participating in conversation, catching the joke or feeling included were becoming a memory. The worst part of the Hearing Loss will affect 95% of Superficial Siderosis patien... More is this feeling of isolation.
The only experience we had with hearing aids was dismal.
The big joke in our family was “If you want memaw to hear you, talk to her hearing aids in her purse.” We returned to ENT number two permanently, and every visit he would recommend a visit to the hearing aid center. Two weeks ago we finally made an appointment intending just to see what they might offer.
The initial visit was impressive. Our audiologist had taken the time to research Superficial Siderosis, the prognosis and the type of damage it was doing. She didn’t sugar coat the expected results. Gary’s hearing would continue to decline; hearing aids could not restore perfect hearing. And we should prepare for the fact we had a two-three year window before Gary would have to explore other alternatives (cochlear implant). She explained with the advancements in nerve-related Hearing Loss will affect 95% of Superficial Siderosis patien... More research she could offer an acceptable hearing aid solution.
She chose Resounds LiNX2, one of the newest generation of smart hearing aids.
It pairs with your cell phone via an app for some pretty surprising results. It is still very early but, so far, no more closed-captioning. No need to speak directly, face to face, to understand. Plus the joy of a constant reminder that “You don’t need to talk so loud.” We look forward to a trip to the movies very soon!