Overview
Craniospinal Hypotension, also known as Intracranial Hypotension is linked as the cause of postural headaches in Superficial Siderosis. It presents as a result of the traumatic event (accident or surgery) which also caused the Superficial Siderosis. Craniospinal Hypotension is a condition caused by a dural leak of your cerebral spinal fluid.
This was my first true symptom. I could not effectively describe what was happening to doctors. I had double sciaticaOverview Peripheral neuropathy sciatica is a pseudo-sciatica... More at the same time, so it was dismissed. I kept it to myself and knew something was seriously wrong.
The pain came on in a split second, felt as if, it traveled from the bottom of my spine, shot to my brain, instantly had excruciating head pain and would collapse. I had no control of any part of my body, just limp. Lying horizontal seemed to stabilize and residual pain lasted for, at least 24 hours. I was told that my eyed rolled back as if, I was having a seizure with no body movement.
After diagnosis, the search was on for the cause of the iron deposits. It was a dural tear that leaked so fast the location could not be pinpointed exactly. Had two blood patches and glue patch that were unsuccessful.
After a year of searching, doctors at Mayo agreed to try surgery. Had a laminectomy T-3 thru T-8, dura had a 1″ x 1/8″ tear repaired. It has never happened since. The pain SIH caused brought me close to suicide.
-Jennifer Soellner
Your body produces fresh spinal fluid every day, but if there is a leak, your body may not be able to replace enough volume to support and cushion your brain. This low volume creates a negative pressure inside your brain cavity.
The signs of craniospinal hypotension are a postural headacheOverview It is challenging to pinpoint the exact cause of su... More, nausea, vomiting, neck pain, visual and hearing disturbances, and vertigo. Diagnosis is dependent on the postural component of a headache; pain increases or eases with positional changes of your head and body.
When pain becomes unmanageable one option is to repair the dural leak.
Updated: November 7, 2020