Treatment Journey
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The Cochlear Implant Journey
Prognosis Superficial siderosis can damage the cranial nerves which could prevent a cochlear implant from working. It wasn’t an easy…
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The Hazard of Blood Thinners
The Anticoagulant Effect on Active Bleeds Suppose you have an identified or suspected active bleed. In that case, your doctors…
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The Long Journey Here | Neurosurgery
Finding care for superficial siderosis patients moves in slow motion—the time spent searching for a diagnosis—next, searching for information. In…
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Radio Silence
Radio Silence You may have noticed the silence of late. Life becomes busy and complicated. Sometimes you need to step…
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Surviving The Neurology Ride
The Patient Experience With The Neurology Ride A visit to Gary’s neurologist often brings to mind when you step up…
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Summertime Neurology Blues
We hit the road last week for another trek to see the neurologist. We usually enjoy these long rides…
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Decoding The Superficial Siderosis MRI
Decoding the Superficial Siderosis MRI There has been a definite increase in people diagnosed with superficial siderosis. The improvements in…
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Neurology Roadtrip
Neurology Roadtrip We made the journey to Gary’s quarterly neurology appointment this week to find an answer to his chronic…
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The Neuropathy Chronicles 2.0
The Neuropathy Chronicles 2.0 You may remember from The Neuropathy Chronicles how we managed to tame the burning foot pain…
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A Whirlwind Testing Tour
Hope We’ve been doing the whirlwind testing tour with Gary’s many specialists these past few weeks. Not only was it…
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Quarterly Neurology Follow-Up
Quarterly Neurology Follow-Up The New Normal By the time we went to our quarterly neurology follow-up we had a pretty…
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