- Advocacy
2023 In Summary
A Mixed Bag Like most years, 2023 has been full of up and downs. Awareness raising is going strong, and…
Read More » - Physical Therapy and Exercise
Morrello Para-Triathlon 2023
Putting the ‘TRY’ in Triathlon Back in 2020 when I first start having neuro-physiotherapy at the Morrello Clinic, Allison my…
Read More » - Personal Stories
Julianne’s Superficial Siderosis Odyssey
Originally published in June 2021, we’re revisiting some of the most inspiring personal journeys gracing our pages. Today, we’re peeking…
Read More » - Bladder/Bowel
Coping with Urinary Incontinence
Urinary incontinence is a medical condition characterized by the involuntary loss of urine. While we refer to incontinence as a…
Read More » - Personal Stories
Captain Robert Cameron
A Nostalgic Look Back: Celebrating Success Stories for SS MonthOriginally published in April 2018, we’re taking a moment during Superficial…
Read More » - Personal Stories
When Neurology Has No Answers: My Journey Through the Maze of Superficial Siderosis
A Nostalgic Look Back: Celebrating Success Stories for SS Month We’re taking a moment during Superficial Siderosis Month to revisit…
Read More » - Perspective
The Psychological Journey with Superficial Siderosis
Living with Superficial Siderosis (SS) is not just a physical ordeal; it’s an emotional and psychological journey that affects not…
Read More » - Mobility and Balance
The Balance Struggle of Neurodegenerative Disorders
Understanding the intricate relationship between vision, balance, and neurodegenerative disorders like Superficial Siderosis is essential.
Read More » - Loss of Smell
Embrace the Crunch: A Journey into Anosmia and Superficial Siderosis
The Unseen Influence of Smell on Taste Most of us take for granted how our sense of smell enriches our…
Read More » - Advocacy
The Neurological Alliance Petition Hand-in
Department of Health and Social Care Members of The Neurological Alliance Co Production Group (a group of people from across…
Read More » - Cognition and Personality
Sundowning and Cognitive Decline in Superficial Siderosis
Managing the symptoms of sundowning and cognitive decline in late-stage SS can be challenging, but there are strategies that caregivers…
Read More » - Personal Stories
A Year of Struggle and Change
A year of struggle and change; that’s what it has been for Gary, our family, and myself. Emerging from the…
Read More » - autonomic dysfunction
Regulating Body Temperature
Feeling Hot and Cold Here are a few reasons people with superficial siderosis may experience these temperature-related sensations. Neurodegenerative disorders…
Read More » - Hearing
The Cochlear Implant Journey
Prognosis Superficial siderosis can damage the cranial nerves which could prevent a cochlear implant from working. It wasn’t an easy…
Read More » - Therapeutic Alternatives
Exploring Curcumin
The Role of Hemosiderin Hemosiderin is an iron-storage protein that forms when ferritin, a primary iron-storage protein, becomes saturated with…
Read More » - Physical Therapy and Exercise
Retrain Your Brain with Vestibular Therapy
Vestibular therapy exercises are designed to improve the vestibular system's function by challenging and retraining the brain to process information…
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