News

SSRA Press Releases

Rhys HolmesJune 18, 2023
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The Neurological Alliance Petition Hand-in
Department of Health and Social Care Members of The Neurological Alliance Co Production Group (a group of people from across…
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Rhys HolmesDecember 28, 2022
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A Rare Reunion
From Tweetup to Meetup Rhys and Deb, 2019 It had been over three years since I’d first met my friend…
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Living With Superficial SiderosisJune 22, 2022
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Community Forum Launches
Welcome to the Superficial Siderosis Discussion Boards While the popularity of social media has shown us a way to connect…
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Living With Superficial SiderosisFebruary 20, 2020
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Introducing Mass General Research Institute
Rare Disease Week kicks off for the SSRA with a trip to our Chief Medical Advisor, Dr. Michael Levys’, new…
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