- Education
UCL Presents A Virtual Live Panel Event
Living with superficial siderosis – the patient’s journey Infratentorial superficial siderosis (iSS) is more commonly known as superficial siderosis of…
Read More » - Hearing
The Cochlear Implant Experience
Is A Cochlear Implant Right For You? Hearing loss affects 95% of superficial siderosis patients. Specialized hearing aids designed to…
Read More » - Surgery
The Road To Neurosurgery
The Neurosurgery Repair Process In this piece, I’m going to share my personal experience of when I was admitted for…
Read More » - Best Life
Exercises for Balance and Mobility
Living Your BEST LIFE with Superficial Siderosis Our readers living with Superficial siderosis should be aware that living your best…
Read More » - Memory
Should You Visit A Neuropsychologist?
Changes Your brain is a complex system that controls your body, guides your thinking, and filters emotional responses. Because infratentorial…
Read More » - Education
Tips For Improved Patient-Physician Communication
Patient to Physician Communication a two-way street Quite often, patients with a rare condition experience a variety of complex symptoms.…
Read More » - Mobility and Balance
What Is Your Fall Risk?
The Dangers Of Mobility And Balance Impairment If you’re living with mobility or balance problems, this is a familiar story.…
Read More » - Body Pain
Managing Neuropathy Pain
Managing Neuropathy Pain Typically, a healthy nerve will only send a signal when it is stimulated, e.g., a nerve in…
Read More » - Body Pain
Dialing Down The Pain
Dialing Down the Body Pain of Superficial Siderosis Gary always hurts It’s a fact-of-life he can’t run from; from his…
Read More » - Treatment Journey
Superficial Siderosis and CSF Leak
Superficial Siderosis and CSF Leak – An Intertwining Complication Superficial siderosis and CSF (cerebrospinal fluid) leak go hand in hand.…
Read More » - Best Life
Chair Yoga for Mobility and Balance
Living Your BEST LIFE with Superficial Siderosis Our readers living with Superficial siderosis should be aware that living your best…
Read More » - Best Life
Finding The Right Healthy Diet
Living Your Best Life with Superficial Siderosis Our readers living with Superficial siderosis should be aware that living your best…
Read More » - Memory
Feed Your Brain Checking Vitamin D Levels
Protecting Cognition and Memory One detail Gary’s neuropsychologist brought up was his low vitamin D level. While it may be…
Read More » - Chelation Therapy
Follow these Seven Steps To Begin Your Chelation Experience
Chelation Therapy For Superficial Siderosis In cases of superficial siderosis, attempting to remove the hemosiderin deposits with the prescription chelator…
Read More » - Surgery
The Hazard of Blood Thinners
The Anticoagulant Effect on Active Bleeds Suppose you have an identified or suspected active bleed. In that case, your doctors…
Read More » - Chelation Therapy
Sometimes You Need A Win For Team Chelation
I was diagnosed with Superficial siderosis in 2015, but it was late 2017 before I finally found a neurologist who…
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