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Superficial Siderosis
Information Brochure
U.S. Social Security
Disability Guideline
Brain Tissue
Donation Program
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- Body Pain
- Brain Project
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Research Alliance
The Superficial Siderosis Research Alliance (SSRA) is a U.S based 501(c)(3) nonprofit organization founded in 2019. The SSRA serves the global Superficial Siderosis patient and caregiver community.
To seek, raise and provide funding in support of medical research for the benefit of the rare disease community affected by the neurodegenerative disease superficial siderosis and the identified symptoms brought on by this disease such as ataxia, hearing loss, and myelopathy.
A future where Superficial Siderosis is no longer a life-altering diagnosis
The alliance is a 100% volunteer-run organization. Find out how you can help our mission.
Global Patient Registry
By sharing your diagnostic and treatment journey, you help our investigators with the data necessary to conduct informed studies and ultimately identify improved treatment options and outcomes for the Superficial Siderosis patient.