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- News
Welcome Rachel Kenner, New Editor of Living With Superficial Siderosis
Living With Superficial Siderosis began in 2014 as one small corner of the internet where Gary and I could make…
Read More » - Live Event
Ask the Experts: Superficial Siderosis Q&A Panel
A Rare Opportunity to Ask Questions About Superficial Siderosis in Real Time If you’ve ever wanted to ask a leading…
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Superficial Siderosis Care
Accessing Specialist Care in the United Kingdom There are significant differences between the United Kingdom and the United States in…
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CT Myelography in Superficial Siderosis
Advancements in Detecting Dural Leaks In superficial siderosis, a common cause of bleeding is a defect or tear in the…
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Living Your Best Life
- Best Life
The Cochlear Implant Journey – A Year On
Background It would be an understatement to say it has been life changing for me to have a perception of sound again, however, it is totally different from having naturally hearing (and no, I don’t…
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Patient Stories
- Advocacy
Getting Involved & Raising Awareness
Getting involved in events to raise awareness of superficial siderosis.
Read More » - Personal Stories
A Year of Struggle and Change
A year of struggle and change; that’s what it has been for Gary, our family, and myself. Emerging from the…
Read More » - Personal Stories
Running on Empty
Superficial siderosis can be excruciatingly draining on everyone it touches. Sometimes it feels like we’re running on empty. It’s been…
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The Struggle Of Dual Neurological Conditions
Superficial Siderosis and Hydrocephalus Having superficial siderosis is one thing, but sometimes like me, it’s possible to have other disabling…
Read More » - Personal Stories
It’s OK not to be OK
It was RUOK day, but I was not OK. Yesterday was RUOK day, but I wasn’t. If I had been…
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Inescapable Realities
Superficial siderosis progresses slowly during the early years. This may be an unintended blessing considering the years many will spend…
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