What is Superficial Siderosis of the Central Nervous System?
Living With Your Diagnosis
Superficial Siderosis of the Central Nervous System is a disorder that develops over time when long-term bleeding into your central nervous system (CNS) overwhelms the body’s natural defenses. As a result, when blood cells break down, neuro-toxic iron particles are left traveling throughout your spinal fluid. In the act of self-protection, your system reacts by releasing proteins to trap these iron particles by encasing them.
U.S. Social Security
Global Patient Registry
The Superficial Siderosis Patient Registry is a confidential observational database of self-submitted information from individuals diagnosed with Superficial Siderosis. One goal of observational studies is to use your experiences to identify key issues for targeted research, including treatment comparisons not evaluated in clinical trials, such as over-the-counter alternatives.
By sharing your diagnostic and treatment journey, you help our investigators with the data necessary to conduct informed studies and ultimately identify improved treatment options and outcomes for the Superficial Siderosis patient.