Feeling Hot and Cold Here are a few reasons people with superficial siderosis may experience these temperature-related sensations. Neurodegenerative disorders often affect the normal functioning of the nervous system, including the parts responsible for regulating body temperature. Superficial siderosis is… Read More... "Regulating Body Temperature"
The Daily Frustrations of Superficial Siderosis
Making Plans Living with superficial siderosis is very frustrating, to say the least; it’s hard to plan anything due to the spontaneity of the symptoms, which regularly leads to a complete change in routine, where I find myself juggling the… Read More... "The Daily Frustrations of Superficial Siderosis"
Eye on Nystagmus
A 2021 Update Learning About Nystagmus It was late 2014. Gary and I were waiting for him to be seen by my ophthalmologist in her exam room when I wondered, why are so many superficial siderosis-related conditions seemingly impossible to… Read More... "Eye on Nystagmus"
Living With A Compromised Neurological Reserve
Metabolic stress is not a friend to the very young, elderly, or those who’ve been dealing with superficial siderosis for awhile. If you’re healthy, enjoy a great immune system, exercise body and mind you easily bounce back after an infection… Read More... "Living With A Compromised Neurological Reserve"
I wrote an earlier piece on livingwithss.com detailing Gary’s intermittent swallowing problem. The Danger Of Dysphagia outlines some serious risks you may face if you choke while eating or drinking. Gary has been evaluated on a regular basis since that… Read More... "Small Victories"
Summertime Neurology Blues
We hit the road last week for another trek to see the neurologist. We usually enjoy these long rides up into the heart of Arkansas, but it seems we can’t escape the unplanned detours lately. We headed out with… Read More... "Summertime Neurology Blues"
The Neuropathy Chronicles 2.0
The Neuropathy Chronicles 2.0 You may remember from The Neuropathy Chronicles how we managed to tame the burning foot pain that is so familiar to Superficial Siderosis patients. Two years have passed, and TCM is still the winner. We saw… Read More... "The Neuropathy Chronicles 2.0"
Quarterly Neurology Follow-Up
Quarterly Neurology Follow-Up The New Normal By the time we went to our quarterly neurology follow-up we had a pretty good list of questions. The cholesterol medication was a big one. What kinds of exercises could we safely add to… Read More... "Quarterly Neurology Follow-Up"
A Very Good Day
Bilateral Sensorineural Hearing Loss Phantom smells and worsening hearing were the first inklings something was wrong. Our first ENT (Ear, Nose & Throat Specialist) decided the smell problems were the result of some past sinus infection. Gary’s hearing loss issues were… Read More... "A Very Good Day"