Treatment Options
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The Cochlear Implant Journey
Prognosis Superficial siderosis can damage the cranial nerves which could prevent a cochlear implant from working. It wasn’t an easy…
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Exploring Curcumin
The Role of Hemosiderin Hemosiderin is an iron-storage protein that forms when ferritin, a primary iron-storage protein, becomes saturated with…
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Is Digital Subtraction Myelography the Answer?
Finding Your Needle Leak in the Haystack While a traditional MRI may show the location of a pseudomeningocele, a Dynamic…
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The Road To Neurosurgery
The Neurosurgery Repair Process In this piece, I’m going to share my personal experience of when I was admitted for…
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Superficial Siderosis and CSF Leak
Superficial Siderosis and CSF Leak – An Intertwining Complication Superficial siderosis and CSF (cerebrospinal fluid) leak go hand in hand.…
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Follow these Seven Steps To Begin Your Chelation Experience
Chelation Therapy For Superficial Siderosis In cases of superficial siderosis, attempting to remove the hemosiderin deposits with the prescription chelator…
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The Hazard of Blood Thinners
The Anticoagulant Effect on Active Bleeds Suppose you have an identified or suspected active bleed. In that case, your doctors…
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Sometimes You Need A Win For Team Chelation
I was diagnosed with Superficial siderosis in 2015, but it was late 2017 before I finally found a neurologist who…
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The Long Journey Here | Neurosurgery
Finding care for superficial siderosis patients moves in slow motion—the time spent searching for a diagnosis—next, searching for information. In…
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Generic Chelation Medication Set To Launch
Taro Launches Specialty Generic Deferiprone Tablets, 500mg in the U.S. Taro Pharmaceutical Industries Ltd. announced the launch of a new…
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Combating Neural Damage
The holy grail of neurodegenerative disease research is discovering a pathway to healing—reversing neural damage, either through regeneration or surgical…
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Is Your Chelation Working?
When the two-year study on the efficacy of Deferiprone was published one finding stood out. Patient-participant physicians submitted MRIs during…
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The Decision To Choose Chelation Therapy
Researching a rare disease on your own is tricky. Superficial siderosis is a serious diagnosis and most of the early…
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Radio Silence
Radio Silence You may have noticed the silence of late. Life becomes busy and complicated. Sometimes you need to step…
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Surviving The Neurology Ride
The Patient Experience With The Neurology Ride A visit to Gary’s neurologist often brings to mind when you step up…
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Countdown To The Last MRI
Our Chelation Journey This past week has seemed like a bad episode of Mission Impossible. We found ourselves desperately racing…
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