- Both a Lover of Music and a Passionate OT, Whose Struggles With SS Have Had a Significant Impact: This is Tim McPherson’s Story
- Charting a New Course for Superficial Siderosis
- Ask the Experts: Superficial Siderosis Q&A Panel
- CT Myelography in Superficial Siderosis
- Finding Harmony Through Challenge: Mikko Pettinen’s Story
Read The Latest
- Hearing
Best Hearing Aids for 2025
Hearing Aids for Sensorineural Hearing Loss A few weeks ago, we received an email asking for advice on which hearing…
Read More » - Personal Stories
Both a Lover of Music and a Passionate OT, Whose Struggles With SS Have Had a Significant Impact: This is Tim McPherson’s Story
It all started on Groundhog Day in 1977. It was my first year attending university in Michigan, my home state.…
Read More » - Research
Charting a New Course for Superficial Siderosis
Superficial Siderosis Symposium Research Roundtable On June 13, 2025, the final morning of the Superficial Siderosis Symposium, a group of…
Read More » - Neurological Reserve
Understanding Neurological Reserve
Why It Matters for Superficial Siderosis Suppose you live with superficial siderosis (or care for someone who does). In that…
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Living Your Best Life
- Physical Therapy and Exercise
Retrain Your Brain with Vestibular Therapy
Vestibular therapy exercises are designed to improve the vestibular system's function by challenging and retraining the brain to process information from the inner ear.
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Patient Stories
- Personal Stories
Meet Fiona Parkinson
Fiona Parkinson has a busy life. This active 45-year-old Australian juggles her duties of tending her family’s small hobby farm,…
Read More » - Personal Stories
A Decade of Strength: Gary’s Journey with Superficial Siderosis
It’s hard to believe it’s been 10 years since we began this journey in 2014. When we first received Gary’s…
Read More » - Personal Stories
Inescapable Realities
Superficial siderosis progresses slowly during the early years. This may be an unintended blessing considering the years many will spend…
Read More » - Personal Stories
Finding Harmony Through Challenge: Mikko Pettinen’s Story
A Life Shaped by Music In the heart of Helsinki, where jazz fills the air and creativity thrives, trumpeter and…
Read More » - Personal Stories
Deborah Hatch
Rare Disease UK “You’re quite a celebrity around here,” my neurologist says, as mum and I meet him in London…
Read More » - Personal Stories
A Very Good Day
When the World Begins to Fade Imagine a world where phantom smells fill the air, and life’s melodies gradually fade.…
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