Superficial Siderosis
- Perspective
The Ripple Effect Of Chronic Illness
The Ripple Effect Of Chronic Illness Most of us will never plan on becoming full-time caregivers. However, some will tackle…
Read More » - Advocacy
Making Our Voice Heard
Superficial siderosis is an ultra-rare condition with a small patient population. Our community knows all too well how difficult the…
Read More » - Treatment Journey
Surviving The Neurology Ride
The Patient Experience With The Neurology Ride A visit to Gary’s neurologist often brings to mind when you step up…
Read More » Focused Neuro-Otological Review of Superficial Siderosis of the Central Nervous System
iSS can be associated with significant neurotologic and cerebellar morbidity; the recurrent SAH variant is frequently clinically symptomatic, has a…
Read More »- Chelation Therapy
Countdown To The Last MRI
Our Chelation Journey This past week has seemed like a bad episode of Mission Impossible. We found ourselves desperately racing…
Read More » - Treatment Journey
Decoding The Superficial Siderosis MRI
Decoding the Superficial Siderosis MRI There has been a definite increase in people diagnosed with superficial siderosis. The improvements in…
Read More » - Superficial Siderosis
Life Expectancy of Superficial Siderosis Patients
Superficial Siderosis Life Expectancy It’s human nature to wonder How long will I live? When you’ve been diagnosed with a…
Read More » - Headache
The Railroad Spike Of Chronic Headache Pain
Living With Chronic Headache Pain Chronic headache pain has been in our lives for years. Our Superficial Siderosis community has…
Read More » - Treatment Journey
A Whirlwind Testing Tour
Hope We’ve been doing the whirlwind testing tour with Gary’s many specialists these past few weeks. Not only was it…
Read More » - Hearing
Whole New Ballgame: ReSound Linx²
The two-week update on the ReSound Linx² hearing aids The question most asked, “Do you still like the new hearing aids?”…
Read More » Contact Us
Please feel free to contact us if you have a question or would like some help finding an answer. We…
Read More »-
After Your Diagnosis
Steps For Help IMPRESSION: Diffusely abnormal decreased signal of the meningeal surfaces more pronounced about the brainstem, cerebellum, and basilar…
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