Research
Research being done in the field of superficial siderosis and chelation therapies.
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FDA Grant Application to Advance Superficial Siderosis Research
A MAJOR MILESTONE FROM THE SSRA MEDICAL AND SCIENTIFIC ADVISORY COMMITTEE Pushing the Boundaries of Rare Disease Research This month…
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NORD Living Rare Study
The Superficial Siderosis Research Alliance is a member of the National Organization of Rare Disorders (NORD). The mission of NORD…
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Charting a New Course for Superficial Siderosis
Superficial Siderosis Symposium Research Roundtable On June 13, 2025, the final morning of the Superficial Siderosis Symposium, a group of…
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Research Day
Taking Part in Superficial Siderosis Research Waking up for the Big Day I woke up to a bad headache, probably…
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Is Neuroprotection The Answer?
Can The Progression Of Superficial Siderosis Be Slowed? The holy grail of any rare disorder is discovering the cure. With…
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One More Family
Our superficial siderosis Facebook family is a tightknit group. We share our problems and successes; we listen and learn from…
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The Superficial Siderosis Patient Registry
Twenty-five years have passed since rare disease advocacy organizations first recognized the need for creating patient-powered registries to attract meaningful…
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The Pathway To Healing
What if research could identify a way to give your body a fighting chance? Kick-start the path to healing? Ataxia,…
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Superficial Siderosis Webinar Transcript
Superficial Siderosis Webinar Transcript Presented by Dr. Michael Levy To view the recorded webinar you may watch here Download…
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Superficial Siderosis Webinar
Superficial Siderosis Webinar In this webinar, Dr. Michael Levy, The Johns Hopkins Hospital, Department of Neurology explains just precisely what…
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