Superficial siderosis progresses slowly during the early years. This may be an unintended blessing considering the years many will spend searching for a diagnosis. Gary’s story timeline has always remained closely aligned with physician estimates. The inescapable reality we must… Read More... "Inescapable Realities"
Fiona Parkinson has a busy life. This active 45-year-old Australian juggles her duties of tending her family’s small hobby farm, animal menagerie, preserving award-winning homegrown food, and mothering three handsome young men. Fiona is also battling Superficial Siderosis. I first… Read More... "Meet Fiona Parkinson"
No, I’m sorry we can’t. It’s become our standard answer to most invitations now. Our niece sent a text last month. Hey, we’re going skydiving do you guys want to come? I was so shocked I asked if she meant… Read More... "Camping with a Chronic Illness"
Robert Cameron has seen the world. Graduating with a degree in Marine Transportation from the United States Merchant Marine Academy, he rose through the ranks and took command of his first vessel in 1980. A voyage that would continue for… Read More... "Meet Robert Cameron"
Bilateral Sensorineural Hearing Loss Phantom smells and worsening hearing were the first inklings something was wrong. Our first ENT (Ear, Nose & Throat Specialist) decided the smell problems were the result of some past sinus infection. Gary’s hearing loss issues were… Read More... "A Very Good Day"
