Education

Superficial Siderosis Symptoms

Superficial Siderosis Symptoms List

 

There are more than 30 recognized clinical Superficial Siderosis symptoms. Sensorineural Hearing Loss, Ataxia, and Myelopathy are considered to be the three classic signs.

We have used these as parent categories¹ for ease of sorting our glossary terms into sub-categories. At least one or two of the big three signs will present in more than 50% of patients.

It is rare for one individual to be affected by every one of these conditions. A few of the following symptoms are very rare. There has been some debate about tremors. Tremors are a clinical symptom of some types of ataxia, but some physicians disagree they are Superficial Siderosis related. It has been suggested they may be associated with unrelated medical conditions.

 

Clinical Symptom Glossary

Anisocoria

Anosmia

Ataxia

Body Pain

Bowel Function

Cerebellar Dysarthria

Craniospinal Hypotension

Dementia

Dental Pain

Depression

Diplopia

Dysdiadochokinesia (DDK)

Dysphagia

Fatigue

Gait

Headache

Hyperreflexia

Mild Cognitive Impairment

Motor Skills Impairment

Myelopathy

Nerve Palsies

Neurological reserve

Nystagmus

Peripheral Neuropathy

Phantosmia

Sciatica

Sensorineural Hearing Loss

Sensory Impairment

Sexual Dysfunction (Female)

Sexual Dysfunction, Male

Short Term Memory Loss

Spasticity

Tinnitus

Urinary Problems

 

Update: June 18, 2018

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Rori Daniel

Living With Superficial Siderosis began in 2014 as a personal blog to keep friends and family informed after my husband, Gary, was diagnosed with superficial siderosis. Over time, it evolved into a trusted resource for patients and caregivers navigating this rare condition. In 2019, Livingwithss.com joined forces with the Superficial Siderosis Research Alliance (SSRA), and together we’ve grown into a global voice for research, advocacy, and education. Through shared stories and expert insight, we continue to raise awareness and push for progress—one patient, one breakthrough at a time.

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2 Comments

  1. The Physician List is great to have along with a complete overview and all that has been gathered in one website is outstanding. Thanks!

  2. This is a daily struggle.Very frustrating educating physicians, family and friends. Thank goodness for our facebook group.

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