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July 16, 2024
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livingwithss.com is the digital magazine publication of the SSRA, your trusted companion in navigating Superficial Siderosis. We are a dedicated community of patients, caregivers, and friends committed to providing the latest medical information, sharing personal stories, and offering a platform for connection and support. Our mission is to empower everyone affected by this ultra-rare neurodegenerative disorder; together, we’re stronger. Join us in our journey towards a future where a Superficial Siderosis diagnosis is no longer a life-altering condition.

The information provided on livingwithss.com is intended for educational and informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your personal physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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The Superficial Siderosis Research Alliance (SSRA) is a volunteer organization run by patients, caregivers, and friends, dedicated to raising awareness, supporting medical research, and providing resources for those affected by this ultra-rare neurodegenerative disorder. Our commitment to transparency, patient privacy, and sharing up-to-date, approved medical information sets us apart. Join us as we work towards a future where Superficial Siderosis is no longer a life-altering condition.

THE SSRA

The Superficial Siderosis Research Alliance (SSRA) is a volunteer organization run by patients, caregivers, and friends, dedicated to raising awareness, supporting medical research, and providing resources for those affected by this ultra-rare neurodegenerative disorder. Our commitment to transparency, patient privacy, and sharing up-to-date, approved medical information sets us apart. Join us as we work towards a future where Superficial Siderosis is no longer a life-altering condition.

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Recent Comments

John R Mitchell
Gail and John Mitchell...
Kay Mills
In manchester. If you would like to read up more on Robin th...
Kay Mills
Hi Peter, my husband Robin was diagnosed with superficial si...
Kay
Hi Stephanie, sorry you haven't heard from me in along time....
Pete Cherrett
I am newly diagnosed but my symptoms have been here for arou...

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