Wes Hale

Wes Hale serves as the Patient Advocate Representative with the National Organization for Rare Disorders (NORD) on behalf of the Superficial Siderosis Research Alliance. As a superficial siderosis patient himself, Wes understands the daily challenges and roadblocks that come with this diagnosis. A lifelong music lover, he enjoys attending concerts and events with his wife, balancing his advocacy work with moments of joy and connection.