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Living with Superficial Siderosisis™ is the digital information publication of the Superficial Siderosis Research Alliance. The SSRA is a 501(c)(3) nonprofit whose mission is advocacy, education, and fundraising for medical research. Living with Superficial Siderosis is your trusted companion in navigating Superficial Siderosis. We are a dedicated community of patients, caregivers, and friends committed to providing the latest medical information, sharing personal stories, and offering a platform for connection and support. Our mission is to empower everyone affected by this ultra-rare neurodegenerative disorder; together, we’re stronger. Join us in our journey towards a future where a Superficial Siderosis diagnosis is no longer a life-altering condition.

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Ask the Experts: Superficial Siderosis Q&A Panel

Finding Harmony Through Challenge: Mikko Pettinen’s Story

Intervention at Only 23: What May Sound Scary Is a Blessing in Disguise

Ask the Experts: Superficial Siderosis Q&A Panel

Intervention at Only 23: What May Sound Scary Is a Blessing in Disguise

Finding Harmony Through Challenge: Mikko Pettinen’s Story