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Categories

Education 47
- Personal Stories 22
- Best Life 7
- Physical Therapy and Exercise 5
- Superficial Siderosis 4
- Live Event 2
Hearing 12
SSRA 21
- Advocacy 17
Mobility and Balance 5
Vision 4
Perspective 4
News 4
Pain 7
- Headache 4
- Neuropathy 2
- Body Pain 2
Treatment Options 27
- Treatment Journey 12
- Chelation Therapy 9
- Therapeutic Alternatives 4
- Surgery 3
Cognition and Personality 9
- Depression 3
- Memory 2
- Personality Change 2
- Neurological Reserve 2
Research 7
- Patient Registry 2
- Webinars 2
- Brain Project 1
Swallow 2
Sleep 1
autonomic dysfunction 1
Loss of Smell 1
Bladder/Bowel 1

About Livingwithss.com

livingwithss.com is the digital magazine publication of the SSRA, your trusted companion in navigating Superficial Siderosis. We are a dedicated community of patients, caregivers, and friends committed to providing the latest medical information, sharing personal stories, and offering a platform for connection and support. Our mission is to empower everyone affected by this ultra-rare neurodegenerative disorder; together, we’re stronger. Join us in our journey towards a future where a Superficial Siderosis diagnosis is no longer a life-altering condition.

The information provided on livingwithss.com is intended for educational and informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your personal physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

THE SSRA

The Superficial Siderosis Research Alliance (SSRA) is a volunteer organization run by patients, caregivers, and friends, dedicated to raising awareness, supporting medical research, and providing resources for those affected by this ultra-rare neurodegenerative disorder. Our commitment to transparency, patient privacy, and sharing up-to-date, approved medical information sets us apart. Join us as we work towards a future where Superficial Siderosis is no longer a life-altering condition.

THE SSRA

The Superficial Siderosis Research Alliance (SSRA) is a volunteer organization run by patients, caregivers, and friends, dedicated to raising awareness, supporting medical research, and providing resources for those affected by this ultra-rare neurodegenerative disorder. Our commitment to transparency, patient privacy, and sharing up-to-date, approved medical information sets us apart. Join us as we work towards a future where Superficial Siderosis is no longer a life-altering condition.

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