I was diagnosed with Superficial siderosis in 2015, but it was late 2017 before I finally found a neurologist who was willing to listen and help me in any way he could. He agreed deferiprone (Ferriprox) was the only treatment… Read More... "Sometimes You Need A Win For Team Chelation"
Tag: chelation therapy
Our Chelation Journey This past week has seemed like a bad episode of Mission Impossible. We found ourselves desperately racing the clock trying to schedule what might be Gary’s last MRI of his brain. Strangely enough, this month marks the… Read More... "Countdown To The Last MRI"
Does Deferiprone provide a clinical benefit to the superficial siderosis patient? If you remember, the April 2017 edition of The Neurology Journal gave us an early peek at what the study findings might be in the final revision of the… Read More... "The Deferiprone Trial Results Are In"
We know most Superficial Siderosis patients are full of questions. If you’re one of the few prescribed the iron chelator, deferiprone, you want to know if chelation is working? The original Pilot Saftey Trial of Deferiprone, M.Levy, and R. Linas, offered… Read More... "Will Superficial Siderosis Chelation Really Work?"
Hope We’ve been doing the whirlwind testing tour with Gary’s many specialists these past few weeks. Not only was it time for his quarterly neurology follow-up, but we found ourselves eagerly waiting for his first MRI scan and hearing test… Read More... "A Whirlwind Testing Tour"