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Home/Chelation/Pilot Safety Trial of Deferiprone

Pilot Safety Trial of Deferiprone

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Version 1.0
Download 143
File Size 1.30 MB
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Create Date February 4, 2018
Last Updated November 3, 2020

Pilot Safety Trial of Deferiprone

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By Rori Daniel

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About Livingwithss.com

Living with Superficial Siderosisis™ is the digital information publication of the Superficial Siderosis Research Alliance. The SSRA is a 501(c)(3) nonprofit whose mission is advocacy, education, and fundraising for medical research. Living with Superficial Siderosis is your trusted companion in navigating Superficial Siderosis. We are a dedicated community of patients, caregivers, and friends committed to providing the latest medical information, sharing personal stories, and offering a platform for connection and support. Our mission is to empower everyone affected by this ultra-rare neurodegenerative disorder; together, we’re stronger. Join us in our journey towards a future where a Superficial Siderosis diagnosis is no longer a life-altering condition.

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autonomic dysfunction (1)
Bladder/Bowel (1)
Cognition and Personality (10)
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Education (52)
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Swallow (2)
Treatment Options (27)
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Vision (4)

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Recent Comments

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God is a ever present help in the times of trouble...
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I had an MRA in 2023 that says Superficial Siderosis is most...
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