Awareness
- Advocacy
What a Year! 2022 Summary
Overview 2022 has been a busy year on the awareness raising front, which is a brilliant feat for such a…
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The Power Of Community
We’re proud to publish the first of many collaborations with blogger and Superficial Siderosis activist Rori Daniel. Find her powerful,…
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Life Expectancy of Superficial Siderosis Patients
Superficial Siderosis Life Expectancy It’s human nature to wonder How long will I live? When you’ve been diagnosed with a…
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