Superficial Siderosis network
- Patient Registry
The Superficial Siderosis Patient Registry
Twenty-five years have passed since rare disease advocacy organizations first recognized the need for creating patient-powered registries to attract meaningful…
Read More » - SSRA
Introducing the Superficial Siderosis Research Alliance
Meet Kyle and Sue Dempsey There is no greater motivating force than the sense of urgency and concern you experience…
Read More » - Advocacy
Meet Rhys Holmes
Rhys Holmes loves music. A 28-year-old Welshman, he spent time in the music program at Glamorgan University. An accomplished…
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Connect
Often a newly diagnosed superficial siderosis patient, their family, and friends feel overwhelmed. Finding a support network is a must.…
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