Monday, November 18 2024

DONATE
PATIENT REGISTRY
SSRA WEBSITE

Facebook
X
LinkedIn
YouTube
Instagram
Donate
Facebook Australia
Support Group
Random Article
Sidebar

Menu

Search for

Patient Section
Professional Section
Post Archive
Research Alliance
Home

.
Popular Articles
- Intervention at Only 23: What May Sound Scary Is a Blessing in Disguise
  July 1, 2024

Home/study

study

Research
Rhys HolmesMay 23, 2021
1 20
Research Day
Taking Part in Superficial Siderosis Research Waking up for the Big Day I woke up to a bad headache, probably…
Read More »

LWSS NEWSLETTER

Unlock Your Health Insights Today!

Stay informed, subscribe to our newsletter now

Join us, let's navigate this journey together

SUBSCRIBE

Subscribe

* indicates required

Email Address *

Name

Opt-In

You are opting-in to:

LWSS Newsletter SSRA Newsletter

You can unsubscribe at any time by clicking the link in the footer of our emails. For information about our privacy practices, please visit livingwithss.com

We use Mailchimp as our marketing platform. By clicking below to subscribe, you acknowledge that your information will be transferred to Mailchimp for processing. Learn more about Mailchimp's privacy practices here.

Recent Posts

Getting Involved & Raising Awareness
July 16, 2024
The Cochlear Implant Journey – A Year On
July 7, 2024
Intervention at Only 23: What May Sound Scary Is a Blessing in Disguise
July 1, 2024
A Decade of Strength: Gary’s Journey with Superficial Siderosis
June 15, 2024
Deborah Hatch
February 27, 2024

Categories

Education 47
- Personal Stories 22
- Best Life 7
- Physical Therapy and Exercise 5
- Superficial Siderosis 4
- Live Event 2
Hearing 12
SSRA 21
- Advocacy 17
Mobility and Balance 5
Vision 4
Perspective 4
News 4
Pain 7
- Headache 4
- Neuropathy 2
- Body Pain 2
Treatment Options 27
- Treatment Journey 12
- Chelation Therapy 9
- Therapeutic Alternatives 4
- Surgery 3
Cognition and Personality 9
- Depression 3
- Memory 2
- Personality Change 2
- Neurological Reserve 2
Research 7
- Patient Registry 2
- Webinars 2
- Brain Project 1
Swallow 2
Sleep 1
autonomic dysfunction 1
Loss of Smell 1
Bladder/Bowel 1

About Livingwithss.com

livingwithss.com is the digital magazine publication of the SSRA, your trusted companion in navigating Superficial Siderosis. We are a dedicated community of patients, caregivers, and friends committed to providing the latest medical information, sharing personal stories, and offering a platform for connection and support. Our mission is to empower everyone affected by this ultra-rare neurodegenerative disorder; together, we’re stronger. Join us in our journey towards a future where a Superficial Siderosis diagnosis is no longer a life-altering condition.

The information provided on livingwithss.com is intended for educational and informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your personal physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

THE SSRA

The Superficial Siderosis Research Alliance (SSRA) is a volunteer organization run by patients, caregivers, and friends, dedicated to raising awareness, supporting medical research, and providing resources for those affected by this ultra-rare neurodegenerative disorder. Our commitment to transparency, patient privacy, and sharing up-to-date, approved medical information sets us apart. Join us as we work towards a future where Superficial Siderosis is no longer a life-altering condition.

THE SSRA

The Superficial Siderosis Research Alliance (SSRA) is a volunteer organization run by patients, caregivers, and friends, dedicated to raising awareness, supporting medical research, and providing resources for those affected by this ultra-rare neurodegenerative disorder. Our commitment to transparency, patient privacy, and sharing up-to-date, approved medical information sets us apart. Join us as we work towards a future where Superficial Siderosis is no longer a life-altering condition.

Contact US

Main Office: +1 (262) 201-0581
Editor: +1 (903) 605-7043
E-mail: info@ssra.livingwithss.com
Editor: admin@livingwithss.com

Newsletter

SUBSCRIBE

Enter your Email address

Facebook
X
LinkedIn
YouTube
Instagram
Donate
Facebook Australia
Support Group

© Copyright 2024, Superficial Siderosis Research Alliance INC. All Rights Reserved |

WEBSITE OWNERSHIP
EDITORIAL AND FACT-CHECKING POLICY
FINANCIALS
PRIVACY|COOKIE POLICY
CONTACT US

Back to top button

Search for:

Popular Posts

Education
Superficial Siderosis Symptoms
May 21, 2015
Life Expectancy of Superficial Siderosis Patients
December 22, 2017
How To Block The Agony Of Brain Zaps
April 12, 2021
Knocking Out The Brain Zaps
June 11, 2021
The Struggle Of Dual Neurological Conditions
December 13, 2020

Most Commented

December 22, 2017
Life Expectancy of Superficial Siderosis Patients
August 3, 2019
Meet Dr. Michael Levy
December 5, 2018
Meet Fiona Parkinson
September 4, 2023
When Neurology Has No Answers: My Journey Through the Maze of Superficial Siderosis
November 10, 2019
Living With Superficial Siderosis
February 21, 2021
The Harsh Reality Of Falling Down

Recent Comments

Eliot Cardenas
Your story is inspirational, and you attitude is wonderful....
Bena Jo Travis
You’ll be in good hands with Dr Levy! He was the first one I...
Sue O.
Thank you for sharing your story. I have an appt. with Dr. L...
Annie B.
Hi David, This may be off topic from your business; however,...
Jacqueline
My husband was diagnosed last year. We are only at the begin...

[ Placeholder content for popup link ] WordPress Download Manager - Best Download Management Plugin

I understand cookies are employed on this page