advocacy
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The Neurological Alliance Petition Hand-in
Department of Health and Social Care Members of The Neurological Alliance Co Production Group (a group of people from across…
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A Rare Reunion
From Tweetup to Meetup Rhys and Deb, 2019 It had been over three years since I’d first met my friend…
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What the SSRA Means to Me
Nowhere to Go When I was first diagnosed with superficial siderosis (SS), there wasn’t much information around. It was a…
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U.K. Neurological Alliances Unite
‘Together for the 1 in 6’ Each of the four countries in the U.K. has its own Neurological Alliance, and…
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Rare Disease Week 2019 on Capitol Hill
Living with Superficial Siderosis will be heading to Capitol Hill in Washington DC this weekend to join with fellow rare…
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