Living With Superficial Siderosis

Living with Superficial Siderosis is the informational site of the Superficial Siderosis Alliance. Contact the editor: admin@livingwithss.com

News
Living With Superficial SiderosisJune 22, 2022
0 89
Community Forum Launches
Welcome to the Superficial Siderosis Discussion Boards While the popularity of social media has shown us a way to connect…
Read More »
Best Life
Living With Superficial SiderosisSeptember 3, 2021
1 303
Chair Yoga for Mobility and Balance
Living Your BEST LIFE with Superficial Siderosis Our readers living with Superficial siderosis should be aware that living your best…
Read More »
Hearing
Living With Superficial SiderosisSeptember 26, 2020
0 102
Sensorineural Hearing Loss
Read More »
Vision
Living With Superficial SiderosisSeptember 21, 2020
0 85
Nystagmus
Read More »
Brain Project
Living With Superficial SiderosisMay 8, 2020
5 102
One More Family
Our superficial siderosis Facebook family is a tightknit group. We share our problems and successes; we listen and learn from…
Read More »
Patient Registry
Living With Superficial SiderosisMarch 26, 2020
2 84
The Superficial Siderosis Patient Registry
Twenty-five years have passed since rare disease advocacy organizations first recognized the need for creating patient-powered registries to attract meaningful…
Read More »
News
Living With Superficial SiderosisFebruary 20, 2020
0 22
Introducing Mass General Research Institute
Rare Disease Week kicks off for the SSRA with a trip to our Chief Medical Advisor, Dr. Michael Levys’, new…
Read More »
SSRA
Living With Superficial SiderosisJanuary 14, 2020
0 33
Believe in Hope 2019 Benefit
We were thrilled to welcome just shy of 100 supporters to our 2019 Believe in Hope Benefit Dinner, December 7, 2019,…
Read More »
Education
Living With Superficial SiderosisOctober 11, 2019
4 35
Who Doesn’t Love a Freebie?
Everyone loves something free but too often there’s some kind of string attached. The item might be free but the…
Read More »
SSRA
Living With Superficial SiderosisOctober 9, 2019
1 37
Introducing the Superficial Siderosis Research Alliance
Meet Kyle and Sue Dempsey There is no greater motivating force than the sense of urgency and concern you experience…
Read More »
SSRA
Living With Superficial SiderosisAugust 3, 2019
18 315
Meet Dr. Michael Levy
The Superficial Siderosis Research Alliance is pleased to announce Michael Levy MD, PhD as the SSRA Board Chief Medical Advisor.…
Read More »
Advocacy
Living With Superficial SiderosisJanuary 20, 2019
4 40
Spotlight Profile: Amanda Fearn-Banfield
Amanda Fearn-Banfield is a creative wordsmith. This wonderful British fireball is not only the behind-the-scenes force responsible for navigating The…
Read More »
Advocacy
Living With Superficial SiderosisMay 22, 2018
0 40
Meet Rhys Holmes
Rhys Holmes loves music. A 28-year-old Welshman, he spent time in the music program at Glamorgan University. An accomplished…
Read More »
Superficial Siderosis
Living With Superficial SiderosisDecember 22, 2017
26 1,851
Life Expectancy of Superficial Siderosis Patients
Superficial Siderosis Life Expectancy It’s human nature to wonder How long will I live? When you’ve been diagnosed with a…
Read More »
Webinars
Living With Superficial SiderosisJuly 28, 2015
3 90
Superficial Siderosis Webinar Transcript
Superficial Siderosis Webinar Transcript Presented by Dr. Michael Levy To view the recorded webinar you may watch here Download…
Read More »
Webinars
Living With Superficial SiderosisJuly 23, 2015
2 71
Superficial Siderosis Webinar
Superficial Siderosis Webinar In this webinar, Dr. Michael Levy, The Johns Hopkins Hospital, Department of Neurology explains just precisely what…
Read More »