rare disease advocate
- Personal Stories
Deborah Hatch
Rare Disease UK “You’re quite a celebrity around here,” my neurologist says, as mum and I meet him in London…
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Meet David M.Dickson Jr.
David M. Dickson Jr. has always enjoyed a zest for an active life. From neighborhood quarterback to surfing, fishing, weightlifting,…
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Making Our Voice Heard
Superficial siderosis is an ultra-rare condition with a small patient population. Our community knows all too well how difficult the…
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