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Feeling Ill

Education
Rori DanielDecember 2, 2015
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Life As A Germ Magnet
Life as a germ magnet. A healthy person strolls through daily life never giving a thought to living with a…
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livingwithss.com is the digital magazine publication of the SSRA, your trusted companion in navigating Superficial Siderosis. We are a dedicated community of patients, caregivers, and friends committed to providing the latest medical information, sharing personal stories, and offering a platform for connection and support. Our mission is to empower everyone affected by this ultra-rare neurodegenerative disorder; together, we’re stronger. Join us in our journey towards a future where a Superficial Siderosis diagnosis is no longer a life-altering condition.

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THE SSRA

The Superficial Siderosis Research Alliance (SSRA) is a volunteer organization run by patients, caregivers, and friends, dedicated to raising awareness, supporting medical research, and providing resources for those affected by this ultra-rare neurodegenerative disorder. Our commitment to transparency, patient privacy, and sharing up-to-date, approved medical information sets us apart. Join us as we work towards a future where Superficial Siderosis is no longer a life-altering condition.

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