Superficial Siderosis Symptoms List   There are more than 30 recognized clinical …

The Decision To Choose Chelation Therapy Superficial Siderosis Diagnosis, Chelation Therapy, …

Chipping Away: Ferriprox   Starting Down The Chelation Road   It was a big …

LEARNING TO LOVE THE CRUNCH   None of the symptoms you can …

 Bilateral Sensorineural Hearing Loss Phantom smells and worsening hearing were the first …

Dealing with ataxia, gait and impaired balance   50% of Superficial Siderosis …

Giving Ferriprox A Chance   When we decided to give Ferriprox a chance, …

Stem Cell Research and Neurodegenerative Healing   Research takes a very long …

The two-week update on the ReSound Linx² hearing aids The question most …

  Green tea has enjoyed such a surge in popularity that …

Finding The Iron Content Of Everyday Foods   I'll be honest - …

Exploring Alternative Medicine   Ataxia was once referred to as the “Drunken …

Putting A Face On The Enemy We've all read the descriptions …

Hello, Switchboard I've Been Disconnected   One of the better explanations I …

Can Physical Therapy Help Balance Problems? We're one year into chelation …

Rethinking Statin Use   Are you a long-term user of popular statin …

Superficial Siderosis Webinar In this webinar, Dr. Michael Levy, The Johns …

Superficial Siderosis Webinar Transcript Presented by Dr. Michael Levy   To view the …

Quarterly Neurology Follow-Up The New Normal By the time we went to …

  We were sitting in the exam room at our ophthalmologist yesterday …

Trying to remove superficial siderosis associated hemosiderin deposits with Ferriprox …

Brain Fog and Stress Brain Fog  Stress  Anxiety  Depression We've both been …

Neuropathy: Burn Me, Stab Me, Shoot Me We touched on our …

The Whirlwind Test Tour We've been doing the whirlwind testing tour …

Germ Magnet Immune System Life as a germ magnet. The average person …

Living With Chronic Headache Pain   Chronic headache pain has been in …

Peripheral Neuropathy Symptoms   Hello Pain, My Old Friend   You might remember from …

Technology has made settling in on the couch watching a …

  I like listening (ok, eavesdropping) to my granddaughters when they …

  First of all, we know the mind of Superficial Siderosis …

Have you ever wondered which is the most frequent and sometimes …

If you're a return visitor to our website, you may …

Gary always hurts.   It's a fact-of-life he can't run from; from …

Life expectancy, on the surface a straightforward question. It's human nature to …

Five-Two Plan Some of our earliest blog posts explained Dr. Levy's …

Honestly, I'm glad to see the back of 2017 Have you ever …

"Does Deferiprone provide a clinical benefit to the superficial siderosis …

We made our trip to Gary’s regular neurology appointment this …

Life with a rare disease or chronic illness has a …

If hearing aids are your lifeline to the world, you …

Every February individuals, patient organizations, NIH, medical researchers, hospitals and …

Vitamin D : Feed Your Brain   One detail Gary’s neuropsychologist recently …

Gary woke this morning without a headache. The first pain-free moment …

  Searching For Clarity With Hearing Loss Conversation for people with sensorineural …

  Most of us never consider the physical mechanics involved with …

If you're living with a gait and balance impairment, this …

  Finding a user-friendly exercise program for patients diagnosed with related …

Western medicine is innovative, but if you search through PubMed, …

Diagnosis of superficial siderosis is rare. It's so unique in …

Robert Cameron has seen the world. Graduating with a degree …

We're proud to publish the first of many collaborations with …

Communication must be a two-way street Rare disease patients often battle …

You move your eyes more often than your heart beats. …

There is some confusion when it comes to understanding Ferriprox …

Tracking Your Hemosiderin   There has been a definite increase in people …

  Rhys Holmes loves music. A 28-year-old Welshman, he spent time …

  Your Superficial Siderosis community advocates, the Living With Superficial Siderosis …

  We hit the road last week for another trek to …

Superficial Siderosis. Subpial Siderosis. Infratentorial Superficial Siderosis. No matter how …

No, I’m sorry we can’t.  It’s become our standard answer to …

  Restless Leg Syndrome (RLS) has become an interesting discussion topic …

Our Chelation Journey This past week has seemed like a bad …

Superficial Siderosis Granted Compassionate Allowance Status The Superficial Siderosis community received validation …

When you think life has settled in it chooses to …

In the United States, there is usually a national standard …

Your brain is a complex system that controls your body, …

We all learned how to be a friend early on but …

Fiona Parkinson has a busy life. This active 45-year-old Australian …

A visit to the neurologist often reminds me of stepping …

I recently came across an interesting question, If you were …

Amanda Fearn-Banfield is a creative wordsmith. This wonderful British …

Imagine living a life that revolves around medication. I know …

Living with Superficial Siderosis will be heading to Capitol Hill …

Superficial siderosis is an ultra-rare condition with a small patient …

What if research could identify a way to give your …