Superficial Siderosis Symptoms List   There are more than 30...

The Decision To Choose Chelation Therapy Superficial Siderosis Diagnosis, Chelation...

Chipping Away: Ferriprox   Starting Down The Chelation Road  ...

LEARNING TO LOVE THE CRUNCH   None of the symptoms...

 Bilateral Sensorineural Hearing Loss Phantom smells and worsening hearing were the...

Dealing with ataxia, gait and impaired balance   50% of...

Giving Ferriprox A Chance   When we decided to give Ferriprox...

Stem Cell Research and Neurodegenerative Healing   Research takes a...

The two-week update on the ReSound Linx² hearing aids The question...

  Green tea has enjoyed such a surge in popularity...

Finding The Iron Content Of Everyday Foods   I’ll be...

Exploring Alternative Medicine   Ataxia was once referred to as...

Putting A Face On The Enemy We’ve all read the...

Hello, Switchboard I’ve Been Disconnected   One of the better...

Can Physical Therapy Help Balance Problems? We’re one year into...

Rethinking Statin Use   Are you a long-term user of...

Superficial Siderosis Webinar In this webinar, Dr. Michael Levy, The...

Superficial Siderosis Webinar Transcript Presented by Dr. Michael Levy  ...

Quarterly Neurology Follow-Up The New Normal By the time we...

  We were sitting in the exam room at our ophthalmologist...

Trying to remove superficial siderosis associated hemosiderin deposits with Ferriprox...

Brain Fog and Stress Brain Fog  Stress  Anxiety  Depression We’ve...

Neuropathy: Burn Me, Stab Me, Shoot Me We touched on...

The Whirlwind Test Tour We’ve been doing the whirlwind testing...

Germ Magnet Immune System Life as a germ magnet. The average...

Living With Chronic Headache Pain   Chronic headache pain has...

Peripheral Neuropathy Symptoms   Hello Pain, My Old Friend  ...

Technology has made settling in on the couch watching a...

  I like listening (ok, eavesdropping) to my granddaughters when...

  First of all, we know the mind of Superficial...

Have you ever wondered which is the most frequent and sometimes...

If you’re a return visitor to our website, you may...

Gary always hurts.   It’s a fact-of-life he can’t run...

Life expectancy, on the surface a straightforward question. It’s human nature to...

Five-Two Plan Some of our earliest blog posts explained Dr....

Honestly, I’m glad to see the back of 2017 Have you...

“Does Deferiprone provide a clinical benefit to the superficial siderosis...

We made our trip to Gary’s regular neurology appointment this...

Life with a rare disease or chronic illness has a...

If hearing aids are your lifeline to the world, you...

Every February individuals, patient organizations, NIH, medical researchers, hospitals and...

Vitamin D : Feed Your Brain   One detail Gary’s...

Gary woke this morning without a headache. The first pain-free...

  Searching For Clarity With Hearing Loss Conversation for people...

  Most of us never consider the physical mechanics involved...

If you’re living with a gait and balance impairment, this...

  Finding a user-friendly exercise program for patients diagnosed with...

Western medicine is innovative, but if you search through PubMed,...

Diagnosis of superficial siderosis is rare. It’s so unique in...

Robert Cameron has seen the world. Graduating with a degree...

We’re proud to publish the first of many collaborations with...

Communication must be a two-way street Rare disease patients often...

You move your eyes more often than your heart beats....

There is some confusion when it comes to understanding Ferriprox...

Tracking Your Hemosiderin   There has been a definite increase...

  Rhys Holmes loves music. A 28-year-old Welshman, he spent...

  Your Superficial Siderosis community advocates, the Living With Superficial...

  We hit the road last week for another trek...

Superficial Siderosis. Subpial Siderosis. Infratentorial Superficial Siderosis. No matter how...

No, I’m sorry we can’t.  It’s become our standard answer...

  Restless Leg Syndrome (RLS) has become an interesting discussion...

Our Chelation Journey This past week has seemed like a...

Superficial Siderosis Granted Compassionate Allowance Status The Superficial Siderosis community...

When you think life has settled in it chooses to...

In the United States, there is usually a national standard...

We all learned how to be a friend early on but...

Fiona Parkinson has a busy life. This active 45-year-old Australian...

A visit to the neurologist often reminds me of stepping...

I recently came across an interesting question, If you were...

Amanda Fearn-Banfield is a creative wordsmith. This wonderful British fireball...

Imagine living a life that revolves around medication. I know...

Living with Superficial Siderosis will be heading to Capitol Hill...

Superficial siderosis is an ultra-rare condition with a small patient...

What if research could identify a way to give your...

The role of becoming a caregiver will alter your life....