Symptoms
- autonomic dysfunction
Regulating Body Temperature
Feeling Hot and Cold Here are a few reasons people with superficial siderosis may experience these temperature-related sensations. Neurodegenerative disorders…
Read More » - Personal Stories
The Daily Frustrations of Superficial Siderosis
Making Plans Living with superficial siderosis is very frustrating, to say the least; it’s hard to plan anything due to…
Read More » - Vision
Eye on Nystagmus
A 2021 Update Learning About Nystagmus It was late 2014. Gary and I were waiting for him to be seen…
Read More » - Neurological Reserve
Living With A Compromised Neurological Reserve
Metabolic stress is not a friend to the very young, elderly, or those who’ve been dealing with superficial siderosis for…
Read More » - Swallow
Small Victories
I wrote an earlier piece on livingwithss.com detailing Gary’s intermittent swallowing problem. The Danger Of Dysphagia outlines some serious risks…
Read More » - Treatment Journey
Summertime Neurology Blues
We hit the road last week for another trek to see the neurologist. We usually enjoy these long rides…
Read More » - Treatment Journey
The Neuropathy Chronicles 2.0
The Neuropathy Chronicles 2.0 You may remember from The Neuropathy Chronicles how we managed to tame the burning foot pain…
Read More » - Treatment Journey
Quarterly Neurology Follow-Up
Quarterly Neurology Follow-Up The New Normal By the time we went to our quarterly neurology follow-up we had a pretty…
Read More » - Personal Stories
A Very Good Day
When the World Begins to Fade Imagine a world where phantom smells fill the air, and life’s melodies gradually fade.…
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