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Guest Post

SSRA
Kyle DempseyOctober 19, 2019
1 34
A Tough Decision
I remember when we heard our daughter had Superficial Siderosis several years ago, we did not know what to do…
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About Livingwithss.com

livingwithss.com is the digital magazine publication of the SSRA, your trusted companion in navigating Superficial Siderosis. We are a dedicated community of patients, caregivers, and friends committed to providing the latest medical information, sharing personal stories, and offering a platform for connection and support. Our mission is to empower everyone affected by this ultra-rare neurodegenerative disorder; together, we’re stronger. Join us in our journey towards a future where a Superficial Siderosis diagnosis is no longer a life-altering condition.

The information provided on livingwithss.com is intended for educational and informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your personal physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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The Superficial Siderosis Research Alliance (SSRA) is a volunteer organization run by patients, caregivers, and friends, dedicated to raising awareness, supporting medical research, and providing resources for those affected by this ultra-rare neurodegenerative disorder. Our commitment to transparency, patient privacy, and sharing up-to-date, approved medical information sets us apart. Join us as we work towards a future where Superficial Siderosis is no longer a life-altering condition.

THE SSRA

The Superficial Siderosis Research Alliance (SSRA) is a volunteer organization run by patients, caregivers, and friends, dedicated to raising awareness, supporting medical research, and providing resources for those affected by this ultra-rare neurodegenerative disorder. Our commitment to transparency, patient privacy, and sharing up-to-date, approved medical information sets us apart. Join us as we work towards a future where Superficial Siderosis is no longer a life-altering condition.

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Recent Comments

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Your story is inspirational, and you attitude is wonderful....
Bena Jo Travis
You’ll be in good hands with Dr Levy! He was the first one I...
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Thank you for sharing your story. I have an appt. with Dr. L...
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Hi David, This may be off topic from your business; however,...
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My husband was diagnosed last year. We are only at the begin...

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