Prognosis Superficial siderosis can damage the cranial nerves which could prevent a cochlear implant from working. It wasn’t an easy decision to make by any means, I had so many questions, but it all came back to the point that… Read More... "The Cochlear Implant Journey"
Category: Rare Disease
What a Year! 2022 Summary
Overview 2022 has been a busy year on the awareness raising front, which is a brilliant feat for such a rare disease. With more awareness, there will likely be more patients diagnosed with superficial siderosis. My neurologist told me that… Read More... "What a Year! 2022 Summary"
A Rare Reunion
From Tweetup to Meetup It had been over three years since I’d first met my friend Deb, who also has superficial siderosis. We met on Twitter in 2018 when we were both tweeting about superficial siderosis. Deb, her mum, and… Read More... "A Rare Reunion"