Superficial Siderosis In The News

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August 21, 2018 / Announcements, News

Social Security Fast-Tracks Decisions for People with Severe Disabilities

Agency Expands Compassionate Allowance List   Nancy A. Berryhill, Acting Commissioner of Social Security, today announced five new Compassionate Allowance...
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August 1, 2018 / News

Living with a rare neurodegenerative disease

  The Australian Brain Alliance www.brainalliance.org.au August 1, 2018     In April 2015, Fiona Parkinson went from an ordinary...
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June 11, 2018 / Announcements

The Patient Registry Registration Instructions

The website address is:    superficialsiderosispatientregistry.org   Take your time and look around the public areas of the website. The...
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June 10, 2018 / News

This man has had a bleed on his brain ever since he was eight years old

Doctors discovered a tumour in his brain two decades ago By Mark Smith Health Correspondent   Wales Online 11:41, 10 JUN 2018...
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June 7, 2018 / Announcements

The SS Patient Registry

  The Superficial Siderosis patient registry is completing the final stages of testing this week. Other than needing a coding...
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May 19, 2018 / Announcements

Coming Soon! Patient Registry Website

Going Live Soon: Superficial Siderosis Patient Registry Website   The new Superficial Siderosis Patient Registry website will be going live in a...
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May 19, 2018 / Events

Breaking The Sound Of Silence, June 8th 2018

A Benefit For the Sufferers of Superficial Siderosis June 8, 2018, 6:00 PMThe Dragonffli, Crumlin Street, NP4 6AE PontypoolDonations On Entry £5
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