Tag Archive for "Superficial Siderosis" - Living With Superficial SiderosisTag Archive for "Superficial Siderosis" - Living With Superficial SiderosisTag Archive for "Superficial Siderosis" - Living With Superficial SiderosisTag Archive for "Superficial Siderosis" - Living With Superficial SiderosisTag Archive for "Superficial Siderosis" - Living With Superficial SiderosisTag Archive for "Superficial Siderosis" - Living With Superficial Siderosis

Posts tagged with superficial-siderosis

Making Our Voice Heard

Posted Friday March 08, 2019 by Living With Superficial Siderosis

Superficial siderosis is an ultra-rare condition with a small patient population. Our...

Superficial siderosis is an ultra-rare condition with a small patient population. Our community knows all too well how difficult the journey to a diagnosis and then care. Too often hope...

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rare disease week capitol hill

Countdown To The Last MRI

Posted Wednesday August 01, 2018 by Living With Superficial Siderosis

Our Chelation Journey This past week has seemed like a bad episode...

Our Chelation Journey This past week has seemed like a bad episode of Mission Impossible. We found ourselves desperately racing the clock trying to schedule what might be Gary’s last...

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Our Chelation Journey

Life Expectancy of Superficial Siderosis Patients

Posted Friday December 22, 2017 by Living With Superficial Siderosis

Life expectancy, on the surface a straightforward question. It’s human nature to wonder “How...

Life expectancy, on the surface a straightforward question. It’s human nature to wonder “How long will I live?” A life-changing illness and thoughts like this can consume you. Superficial Siderosis Life Expectancy,...

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Time Slip

Staying Woke

Posted Wednesday November 29, 2017 by Living With Superficial Siderosis

  I like listening (ok, eavesdropping) to my granddaughters when they find...

  I like listening (ok, eavesdropping) to my granddaughters when they find time to get together. Our grandchildren range in age from a college student, high school, elementary to toddler....

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