The Effect of a Rare Disease on Mental Health

Superficial Siderosis 2015-2016 Getting a diagnosis was the first step. After about a year of health deterioration, multiple hospital admissions and tests, I was physically and mentally exhausted. I missed so much time at work and was really struggling to sleep at night due to the endless symptoms. The anxiety was becoming a huge issue for me. What will happen next? Can things get better? I had been in generally good health for the past few years, so this was all kind of new to me. Having recently started a new job which I was still trying to get to grips with, my health plummeted. Firstly, my hearing suddenly went in my right ear and had a massive impact on my social life as I was a guitarist in a rock band. Losing a hobby and passion was one thing. Still, the fact it had happened only a few months

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Thread of Depression

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Have you ever wondered which is the most frequent and sometimes incapacitating superficial siderosis symptom? Sensorineural hearing loss, ataxia, and myelopathy are all life-changing, but the single most shared symptom members of our superficial siderosis community battle is depression. Not everyone will fall head first into a pit of despair, but the fight for your health wears down even the most optimistic person. As your physical well-being slips, stressors begin to take over as your quality of life slowly begins to change.  If you’re one of the lucky few to develop anosmia enjoying a great meal is now a memory. Conversations become impossible to follow leaving you to feel isolated. Going to work is a nightmare. Vision problems rob you of your ability to drive. The bonus? If you live in an area without access to public transportation, say goodbye to your independence. Stress And Depression Extreme chronic stress is known to evolve

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Punching Through the Brain Fog

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Brain Fog and Stress Brain Fog  Stress  Anxiety  Depression We’ve both been fighting a definite lack of focus.The last few months have not only been busy but very stressful for us. We headed into the summer months not giving much thought to the immediate future. Health wise things were leveling out so we felt we could focus on refining the details of our life. A three-week bout with pneumonia and bronchitis proved just how tough dealing with illness could be with a compromised immune system. A beloved sister faced the re-occurrence of her cancer. Her battle was short and as about as unfair as life could make it. We are still mourning her passing. Our health insurance notified us they are discontinuing all PPO networks for individually purchased policies in Texas. Forced into an HMO network. Seven specialists and one PCP physician. Will we have to find all new doctors?  New doctors

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