iSS can be associated with significant neurotologic and cerebellar morbidity; the recurrent SAH variant is frequently clinically symptomatic, has a shorter latency and greater neurotologic disability. In these cases, a thorough search and management of a covert source of bleeding may stop clinical progression. The frequency and clinical course of radiographic iSS after traumatic and post-aneurysmal SAH is largely unknown. Detection of radiographic iSS after trauma or aneurysm bleeding suggests that the slower clinical course could benefit from an effective intervention if it became available. The use of cochlear implants is a valid alternative with advanced hearing impairment.
Visit the Superficial Siderosis Pateint Registry. Open to patients, caregivers, and researchers worldwide. This registry offers you a chance to participate in research surveys and trial announcements.
Visit the official SSRA Gear store. The proceeds of every purchase helps fund the Superficial Siderosis Research Alliance research grant, education, and awareness programs.
Hearing Impaired 5PK
PLEASE VOTE WEEKLY
BLOG: Superficial Siderosis Research Alliance
SUPERFICIAL SIDEROSIS RESEARCH ALLIANCE