Exploring Ayurveda For Cerebellar Ataxia And Pain Control

Western medicine is innovative, but if you search through PubMed, you find very few drug trials for degenerative cerebellar ataxia. There is no known cure for ataxia, so our best hope still lies in finding a therapy to ease the symptoms. With all the modern innovations available what if one possible answer lies in an ancient system of holistic healing? Ayurvedic medicine deserves a look. “Ayurveda” comes from the Sanskrit words Ayur (life) and Veda ( knowledge) and is the oldest (5,000-year-old) recorded system of medicine in history. It combines the concept of whole health; lifestyle, exercise, diet along with medicinal herb compounds, some which predate written history. Many traditional therapies are now being studied in a clinical setting using western methods of research, double-blind trials, and research review to prove or disprove their efficacy. The most promising trial we’ve previously highlighted is Degenerative Cerebellar Ataxia After Ayurvedic Therapy. In 2009 a joint study in India was conducted by…

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Dialing Down The Pain

Superficial Siderosis Pain

Gary always hurts.   It’s a fact-of-life he can’t run from; from his head to his toes, 365 days a year, 24-hrs a day. Pain. The days his pain scale reads 3 or 4, those are good days.  Most days he can look forward to hitting 5 or 6; but if a headache decides to join in at full force, then you can throw out that scale. Thankfully there are ways to ease some of the body ache and joint pain. Doctors frown upon taking acetaminophen in truckload quantities. Floating in a haze of prescription painkillers is an option, but Gary already takes 199 pills a week. ONE HUNDRED AND NINETY-NINE PILLS. It’s understandable why we try to find him relief using alternative methods. I make Arnica infused olive oil in large batches. I tried arnica first when I hurt a flexor muscle running. (Lesson- stretch, stretch, stretch). You can…

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The Neuropathy Chronicles

Pain of neuropathy

Neuropathy: Burn Me, Stab Me, Shoot Me We touched on our search for some relief from peripheral neuropathy in our August blog post, QUARTERLY NEUROLOGY FOLLOW-UP. You’ll find an explanation of the type of neuropathic pain connected with Superficial Siderosis in MANAGING NEUROPATHIC PAIN. Sharp jolting stabs of burning pain across one or both feet was making it impossible to sleep. A short trial run of the prescription medication Lyrica was discontinued due to some very off-putting side effects. We were trying to avoid the opiate road for as long as possible, so in August we turned to Traditional Chinese Medicine (TCM). A tincture made from boiled rhizomes of the Corydalis Yanhusuo plant has been used to treat pain since the eighth century by TCM practitioners. Modern day researchers have identified twenty alkaloids, including tetrahydropalmatine (THP), which acts as a sedative and analgesic, as well as dl-Tetrahydropalmatine, Corydaline, Protopine, Tetrahydrocortisone,…

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Quarterly Neurology Follow-Up

Quarterly Neurology Follow-Up The New Normal By the time we went to our quarterly neurology follow-up we had a pretty good list of questions. The cholesterol medication was a big one. What kinds of exercises could we safely add to the walking? Did we need to see a Neuroopthamoligist instead of our ophthalmologist? What alternatives, besides prescription medications, were there for the neuropathy pain, body, and joint pain? The hand and trigger finger problems had become extreme. Some days it is impossible to hold a fork or use a knife. Was this even SS related? What decision had the doctor come to in regards to searching for an active bleed? The Statin Question Our neurologist agreed pretty quickly we had a valid concern about the ten-year history of statin use. She reviewed cardiac health history. His parents had both been treated long-term for high cholesterol. Gary’s number had a history of…

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Managing Neuropathic Pain

Hello, Switchboard I’ve Been Disconnected   One of the better explanations I found during our search for ways to manage neuropathic pain associated with Superficial Siderosis was a quote from Dr. Corey W. Hunter¹. “Typically, a healthy nerve will only send a signal when it is stimulated, e.g., a nerve in the hand that senses temperature will stay quiet until the hand gets near the flame on the stove. However, an injured nerve is like a broken telephone that rings when no one is calling (burning) and is unable to get a dial tone when you need to make a call (numbness). Even when it has nothing of importance to say to the brain, the nerves will send a message and a confused message at that. The “confused” message can be interpreted by the brain as pain or strange sensations like “pins and needles.” Over time, the spinal cord can…

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Cerebellar Ataxia and Ayurvedic Therapy Possibilities

MRI 2014

Gait, balance, hand coordination, vision, speech, swallowing, cognitive, mood problems, and fatigue are all related to the ataxia that develops because of cerebellar atrophy. Ataxia was once referred to as the “Drunken Sailor” syndrome a few hundred years ago. We can relate big time. The gait problems that arrive with the symptoms from Superficial Siderosis are just one of many that fall under the authority of ataxia. The nature of Gary’s cerebellar atrophy has dropped almost every single symptom directly in our lap. Vision issues have made driving no longer possible. Speech, swallowing, and coordination problems are intensified by fatigue. Cognitive issues appear to be evening out some as of late so being the glass half full part of this partnership I’m going to chalk that up to some positive effect of the green tea. As for mood, well we’ve been married 37 years, so we deal with that in…

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