Category: Education

Information on how you can navigate through treatments, therapies, doctors and life with superficial siderosis

Six Steps To Becoming A Better Friend
We all learned how to be a friend early on but for those of us who know someone fighting a rare disease or chronic illness, it takes some understanding along with...
By Living With Superficial Siderosis Published October 31, 2018 Education
The Superficial Siderosis Patient Registry
Your Superficial Siderosis community advocates, the Living With Superficial Siderosis website and The Silent Bleed -Your Superficial Siderosis Charity have joined together in a grassroots effort to support the...
By Living With Superficial Siderosis Published June 10, 2018 Education, Research
Decoding The Superficial Siderosis MRI
Tracking Your Hemosiderin There has been a definite increase in people diagnosed with superficial siderosis. The improvements in neuroimaging have resulted in advanced iron sensitive 2-D and 3-D MRI...
By Living With Superficial Siderosis Published May 17, 2018 Education
Tips For Developing Great Patient-Provider Communication Skills
Communication must be a two-way street Rare disease patients often battle a variety of complex clinical symptoms. A visit to your specialist often results in as much confusion by the...
By Living With Superficial Siderosis Published May 3, 2018 Education
20 Strength Exercises When You’re Fighting Mobility Problems
Finding a user-friendly exercise program for patients diagnosed with related ataxia symptoms isn’t easy. For example, Gary is limited to lifting 10lbs so he doesn’t cause fresh bleeding into...
By Living With Superficial Siderosis Published March 19, 2018 Education

Category: Education

Six Steps To Becoming A Better Friend

The Superficial Siderosis Patient Registry

Decoding The Superficial Siderosis MRI

Tips For Developing Great Patient-Provider Communication Skills

20 Strength Exercises When You’re Fighting Mobility Problems