Kyle Dempsey is the Co-Founder, and President of the Superficial Siderosis Research Alliance (SSRA). His daughter Mackenzie was diagnosed with Superficial siderosis due to a head injury at three years old.

A Tough Decision

SSRA Guest Post

I remember when we heard our daughter had Superficial Siderosis several years ago, we did not know what to do or think. She had no symptoms, she had been in a car accident about four years prior and we had scheduled an MRI because another doctor noticed her tongue had some involuntary movement.

read more….