I remember when we heard our daughter had Superficial Siderosis several years ago, we did not know what to do or think. She had no symptoms, she had been in a car accident about four years prior and we had scheduled an MRI because another doctor noticed her tongue had some involuntary movement.
Visit the Superficial Siderosis Pateint Registry. Open to patients, caregivers, and researchers worldwide. This registry offers you a chance to participate in research surveys and trial announcements.
Visit the official SSRA Gear store. The proceeds of every purchase helps fund the Superficial Siderosis Research Alliance research grant, education, and awareness programs.
Hearing Impaired 5PK
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BLOG: Superficial Siderosis Research Alliance
SUPERFICIAL SIDEROSIS RESEARCH ALLIANCE