Finding Help

The bottom line is it is challenging to find a neurologist who is both willing to accept a superficial siderosis patient and prepared to research treatment.

Steps For Help

You Are Not Alone

Often a newly diagnosed superficial siderosis patient, their family, and friends feel overwhelmed. Finding a support network is a must. Remember, you are not alone.

Learn More

Introducing The SSRA

To seek, raise and provide funding in support of medical research for the benefit of the rare disease community affected by the neurodegenerative disease superficial siderosis

Join Us


Visit the Superficial Siderosis Research Alliance Website SSRA is a registered 501(c)(3) Nonprofit

Visit SSRA

Worldwide Patient Registry

The Superficial Siderosis Patient Registry benefits the worldwide community of patients and caregivers.

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