Staying Woke:

Superficial Siderosis Awareness

Get Woke   I like listening (ok, eavesdropping) to my granddaughters when they find time to get together. Our grandkids ages range from a first-year college student, high school, elementary to toddler. Conversations can be eye-opening. You learn a lot: who’s salty, why something’s lit, and being woke. If you follow social media, you see it everywhere. It stays with me, this word. Woke. People are willing to be engaged.   It’s Up To Us   There’s a significant message in “being woke” for the Superficial Siderosis fam. We are obligated to spread awareness. Whether for ourselves or an advocate…

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Superficial Siderosis : Education and Standard of Care

Needle Haystack

Diagnosing The Needle In The Haystack Superficial Siderosis physician education and a Standard of Care policy are two areas that need work. Doctors touch on Superficial Siderosis during their medical training. But it presents so rarely during their everyday practice it’s no wonder a diagnosis is either considered inconsequential or untreatable. Even when presented with new research some physicians feel reviewing fresh data is not a priority. Need to know. If you’ll never have to treat it why bother? In the United States, with any other serious condition, there is a national standard of care for your particular diagnosis. A…

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