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- News
Welcome Rachel Kenner, New Editor of Living With Superficial Siderosis
Living With Superficial Siderosis began in 2014 as one small corner of the internet where Gary and I could make…
Read More » - Live Event
Ask the Experts: Superficial Siderosis Q&A Panel
A Rare Opportunity to Ask Questions About Superficial Siderosis in Real Time If you’ve ever wanted to ask a leading…
Read More » - Perspective
Superficial Siderosis Care
Accessing Specialist Care in the United Kingdom There are significant differences between the United Kingdom and the United States in…
Read More » - Treatment Options
CT Myelography in Superficial Siderosis
Advancements in Detecting Dural Leaks In superficial siderosis, a common cause of bleeding is a defect or tear in the…
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Living Your Best Life
- Best Life
Exercises for Balance and Mobility
Living Your BEST LIFE with Superficial Siderosis Our readers living with Superficial siderosis should be aware that living your best life means you need to look beyond simply treating the symptoms. Both your physical and…
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Patient Stories
- Personal Stories
When Neurology Has No Answers: My Journey Through the Maze of Superficial Siderosis
A Nostalgic Look Back: Celebrating Success Stories for SS Month We’re taking a moment during Superficial Siderosis Month to revisit…
Read More » - Advocacy
Getting Involved & Raising Awareness
Getting involved in events to raise awareness of superficial siderosis.
Read More » - Best Life
The Cochlear Implant Journey – A Year On
Background It would be an understatement to say it has been life changing for me to have a perception of…
Read More » - Personal Stories
Deborah Hatch
Rare Disease UK “You’re quite a celebrity around here,” my neurologist says, as mum and I meet him in London…
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What the SSRA Means to Me
Nowhere to Go When I was first diagnosed with superficial siderosis (SS), there wasn’t much information around. It was a…
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Inescapable Realities
Superficial siderosis progresses slowly during the early years. This may be an unintended blessing considering the years many will spend…
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